My name is Yamayra Alvarez from Brooklyn Dispatch at Action. My nephew Myan has 3 heart diseases. Myan had open heart surgery when he was 2 months old and another two surgeries in 2015 and early 2016. Myan’s mother Michelle Velez is an open book when it comes to raising a child with a Congenital Heart Defect. This year on October 15th we are hoping to get a team of people to help support Myan and all those effected by congenital heart disease by participating in a walk. Read more here about Michelle’s story and the details of the fundraiser!
I am Michelle Valez, Myan’s mother. Myan he was born with the 3 below heart defects, Epstein’s Anomaly, Atrial Septal Defect (ASD), and Ventricular Septal Defect. Here is a little background on those 3 diseases. Epstein’s Anomaly is a congenital heart defect in which the septal and posterior leaflets of the tricuspid valve are displaced towards the apex of the right ventricle of the heart. ASD also known as Atrial Septal Defect (ASD) is a "hole" in the wall that separates the top two chambers of the heart. This defect allows oxygen-rich blood to leak into the oxygen-poor blood chambers in the heart. ASD is a defect in the septum between the heart’s two upper chambers (atria) and a VSD. Ventricular septal defect (VSD) is a hole in the wall (septum) separating the ventricles of the heart. VSD is the most common type of heart malformation present at birth (congenital heart disease). VSD lets blood shunt from the left ventricle to the right ventricle.
Despite all the trails Myan has faced he is still a very outgoing child that smiles even when he’s not feeling well. He’s my VERY OWN PERSONAL SUPERHERO. He loves swimming, dinosaurs, Pokémon and the outdoors.
We are hoping my team this year is 20 + people. We would love a huge turnout and for everyone to come together on this day to support our Son. Together we can all make reaching our goal happen and promote awareness. I know everyone has different financial situations, but for those of you who can contribute ANYTHING is appreciated. All funds that are donated, go directly to the congenital heart walk fundraiser not to Myan or myself.
Please support us by donating and helping us meet our fundraising goal. You too can join the team and make an impact for children living with congenital heart defects!
If you are serious in being a member of our team, please send me a message.
When: Sunday, October 15, 2017
Where: Riverbank State Park, 679 Riverside Drive, New York, NY 10031
Time: Registration 9:00 AM | Walk kicks off at 10:00 AM
What: Offering a family friendly 1 mile walk route!
WOOOOHOOO LETS GO TEAM MYAN!!!! T-shirts will be provided to everyone on our team.
THANK YOU FOR VISITING MY CONGENITAL HEART FUNDRASING PAGE!!